inflammatory bowel disease
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Flaring Up
Until late September, I was feeling great. Better than I had been in years. The Inflectra/Remicade infusions were doing what they were supposed to do, and after some gentle advocating for myself, even dealing with the infusion center wasn’t so stressful anymore. I was working out, sometimes twice a day. I was able to get… Continue reading
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On Advocating For Yourself (Even if You’re a People Pleaser)
What you probably don’t know about me, because, well, you don’t know me, is I’m a chronic people pleaser. It comes out often in social settings, but, surprisingly (or maybe unsurprisingly) it comes out in medical settings too. The first doctor I saw who diagnosed me with Crohn’s laughed at me when I asked him… Continue reading
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My Introduction to Inflectra
Well, long time no talk. There’s a lot to catch up on. So, let’s jump in! After my last Humira dose on Christmas day, the welting persisted. I reached out to my doctor’s office to let my gastro know I still had the issue even with the dermatologist’s prescription and she immediately put in a… Continue reading
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Book Review: Crohn’s and Colitis for Dummies by Tauseef Ali
Title: Crohn’s and Colitis for Dummies, Second Edition Author: Tauseef Ali Publication Date: September 19, 2022 Great for: Newly-diagnosed, friends/family, reference Here’s something you don’t know about me yet: I love to read! And to review books! And, now, apparently, I love to learn more about my diagnosis! So, combine all of those and out… Continue reading
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On Well-Meaning Friends and The Diets They Recommend
I’m not exactly shy about telling people, friends or less-than, that I have IBD. I’ll talk and talk about my colonoscopies, my stool tests, and my symptoms because I don’t see it as something to be kept secret. There’s nothing wrong with keeping medical issues close to your chest, but I choose not to because… Continue reading
