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Book Review: This is Body Grief by Jayne Mattingly
Title: This is Body Grief Author: Jayne Mattingly Publication Date: March 18, 2025 Great for: Psychological support, newly diagnosed, feeling seen This is Body Grief is a non-fiction book about Body Grief, which is a term that puts a name to the grief involved in, well, having a body that can get sick, get hurt, Continue reading
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My Appointment with Mayo Clinic Gastroenterology in Scottsdale, Arizona
After the last few weeks have been less than ideal for me, I felt like I needed a change. I felt let down by my doctor’s office and their lack of taking my reports of pain and struggle seriously. I felt helpless, a little, and hopeless. I read a book recently that discussed Body Grief, Continue reading
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Stuck Between A Rock and a Hospital Place
Well, things have gone downhill since my last post. After starting Prednisone two weeks ago, nothing got better. Nothing. Unlike my last flare-up, I didn’t respond at all to the steroids at all. I tried reaching out to my doctor’s office a week ago to see what else we could do, and, because my timing Continue reading
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Flaring Up
Until late September, I was feeling great. Better than I had been in years. The Inflectra/Remicade infusions were doing what they were supposed to do, and after some gentle advocating for myself, even dealing with the infusion center wasn’t so stressful anymore. I was working out, sometimes twice a day. I was able to get Continue reading
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On Advocating For Yourself (Even if You’re a People Pleaser)
What you probably don’t know about me, because, well, you don’t know me, is I’m a chronic people pleaser. It comes out often in social settings, but, surprisingly (or maybe unsurprisingly) it comes out in medical settings too. The first doctor I saw who diagnosed me with Crohn’s laughed at me when I asked him Continue reading
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My Introduction to Inflectra
Well, long time no talk. There’s a lot to catch up on. So, let’s jump in! After my last Humira dose on Christmas day, the welting persisted. I reached out to my doctor’s office to let my gastro know I still had the issue even with the dermatologist’s prescription and she immediately put in a Continue reading
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Book Review: Crohn’s and Colitis for Dummies by Tauseef Ali
Title: Crohn’s and Colitis for Dummies, Second Edition Author: Tauseef Ali Publication Date: September 19, 2022 Great for: Newly-diagnosed, friends/family, reference Here’s something you don’t know about me yet: I love to read! And to review books! And, now, apparently, I love to learn more about my diagnosis! So, combine all of those and out Continue reading
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Trouble in Humiradise
Okay, I’m back with a three-month update since starting Humira. I’ve got good news and bad news. First, the good news! Humira is working! My inflammation markers are all down into the normal range except calprotectin which is much, much lower than it was before. So, yay! I’m feeling better, eating more, and gaining weight. Continue reading
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On Well-Meaning Friends and The Diets They Recommend
I’m not exactly shy about telling people, friends or less-than, that I have IBD. I’ll talk and talk about my colonoscopies, my stool tests, and my symptoms because I don’t see it as something to be kept secret. There’s nothing wrong with keeping medical issues close to your chest, but I choose not to because Continue reading
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The Humira Road So Far
It has been seven weeks since I started Humira and I’m finally noticing some changes. To catch you up, here’s what has happened since my first dose. For my second dose around a month ago, a nurse with Humira scheduled a video call with me to go over tips and tricks with me. I prepped Continue reading
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- Medical (9)
- Personal (4)
My Crohn's Diaries 